LIVING LIFE ONE OBSTACLE AT A TIME

PART 2 OF BEING ME Please remember that this part is a reflection of my experience so it can't really be right or wrong.  However feel free to ask questions or even share your experience, who knows, maybe you too were at the conference, but it was so crowded we may never have passed paths. As we prepare to attend the next Oley foundation conference this June, in Saratoga Springs New York, I came across some interesting information that made me go into reflection mode. When we attended the conference one of the people we came across was a guy from California, and he had been writing a newsletter called The Sweet TPN times.  He shared his personal story and spoke a little about the newsletter. He wanted me to become a reader and even share my story.  He said he wanted to send me a few issues in the mail to check out.  A couple weeks after the event, I was surprised to receive a large package and in it was many issues, roughly 100 pages ,so...

Do not be embarrassed, the feelings and emotions and reactions you have or have had are "normal."  I have written a lot about the physical side of my illness, the common symptoms, and it seems to me from what I see and what I hear,  most complaints, symptoms, and questions, come from the physical side first. Most people, like myself, do not share about the psychological side of things.  Yeah, some mornings I wake up, and throw my blanket back over my head and pretend im not there, not wanting to deal with what the day may bring. Sometimes I wish I could switch bodies with some one else for a day, some times I want to go on vacation and other times I may feel like I want to go on vacation from myself.  Other days I wake up feeling so energetic and ready to go , when I get those days, I need to take advantage of them fast.  Like I respond to any one who asks me how are you, my response I get good days and I get bad day...