LIVING LIFE ONE OBSTACLE AT A TIME

Please support me in raising awareness for the Oley foundation, I have set 2 goals for the walk-a-thon: To raise a minimum of $500 Be able to walk rather then Javier having to push me in my wheelchair As most of you know I have been dependent on IV and Tube feedings since 2011 as a result of an undiagnosed immune/ auto immune deficiency.  I receive home healthcare and in 2013 I received knowledge of the Oley foundation and since it has been my go to page with any questions regarding my tubes and/ or nutrition. They are a non-profit organization that provides free information to help people who are dependent on IV or tubes live a more "normal" life.  It has truly been a rough couple of years both physically and mentally. A lot of people look at the box but not in the box, people like to visually see a smile and a smile means happiness, but in a lot of cases that is not the truth.  There have been plenty of times that no matter how I feel...

  So yesterday, a dana farber Wednesday started off as a typical dana farber Wednesday, a ton of traffic, a lot of attitudes, great people watching, and unfortunately a lot of appointments.  The different part was that the hospital went live on EPIC, still after being at the hospital for over 6 hours I still have no idea what EPIC means, besides new computer systems and large groups of people wearing blue vests that said "EPIC" congregating throughout the hallways of the Brigham and Dana.  As an outsider looking in there appeared to be a great deal of confusion and poor training.  We were running late to the first appointment so we went to the lab at DF before heading over to the  appointment at Brigham, however because of the time crunch the lab actually took us early. SURPRISE HAHA not the big surprise though, guess you got to keep reading:)   We really didn't notice anything different at the lab...