LIVING LIFE ONE OBSTACLE AT A TIME

I AM A BOSTON SPORTS FAN!! I love baseball season, the red sox and who ever is playing the Yankees get my vote, I love going to Fenway, whether it is to watch a game, take a tour or even to attend a wedding expo.  I love football, college, NFL or even the women's league, I love the patriots, and who ever is playing against Peyton Manning, gets my vote.  I also love soccer, and even though I was never a great soccer player or even athlete like my siblings, it has been in my life for as long as I can remember.  I do enjoy watching soccer on TV, however I sometimes feel that the MLS is a little boring because it is pretty slow paced compared to the European leagues and the world cup. I love both women and men soccer however over the years I have really fallen back in love watching the women teams play.  I grew up as Mia Hamm and Brandi Chastain being mentors, and watching the Olympics.    I love going to Gillette stadium whether its to watch the...

I know I grew up being told no question is a stupid question, however I am definitely beginning to discredit that theory. So today started as a typical Brigham/Dana Wednesday.  Horrible long drive in, due to stupid mass holes and the rain, but we got there.  Finished appointment at Brigham and headed over to Dana to start the rest of the day.  We arrived at the lab at 10:10 for a 10:30 appointment only to be told that they were 30 minutes behind based on your draw time.  So we quickly learned that it does not matter if you are early on time or late to the lab, regardless you get penalized.  By the time blood was drawn, a quick lunch for Javi and a quick trip to the Alex and Ani positive energy table for me,(fell in love with a bracelet) and then back upstairs to another typical over filled waiting room.  When vitals and what not were finally done and there was a empty room it was well over the time of my appointment.  We met with the N...

Dana Farber Wednesdays are never the same.  It always sets off a whirlwind of emotions and sends me into reflection mode.  There is a lot of wait time involved and having to go so often you start to blend in and it almost becomes second nature to you.  You see a lot of the same patients each time, and it can be very emotional because one week you may see this women dressed in pink, smiling, walking around and being social and the next time you see the same women dressed all in pink, instead of smiling you can see the face of pain and instead of walking around you see her masked, gloved and curled up in a wheelchair covered with a blanket.  Cancer and other diseases can move so fast or so slow but regardless emotions can go wild. Sometimes I really have to remind myself to stop putting pity on myself because no matter what I am going through, what pain I am dealing with, there are other people that are much worse off then me.  I have to remind myself to get ba...

I have been contemplating since my last post as to where I should go now   I have decided that I am going to talk about the pain that I deal with every day of my life for the last 10 years, gradually getting worst.  The hardest part of having pain is to get to the root of it, and the biggest part of that is finding the correct dr. and to understand that in some cases it may take multiple drs. before you get answers.   The hardest part with pain is to get people to believe you.  I have gastroparesis, not a broken arm or a large cut, you can not physically see my pain.  The biggest myth about pain, is if you cant see it, it must not be real.  Trust me when I say there are a lot more people then you could imagine that live on a daily basis with pain.  A lot of people will give up before they can get answers.  A lot of times you may be viewed as a pain med seeker, attention seeker, or even psychotic. However, the most imp...

Fair warning>>>> this is a very long post.  Also this is my point of view, and I understand that some people may think or believe differently, or may have a comment or question. Just to reiterate as I have said from the beginning this blog is not for sympathy it is for awareness. And please remember comments and opinions are welcome, I just ask please no bashing people for what they might write and believe.  So the literal definition of this phrase is exactly how it sounds, "don't judge a book by the cover."  Remembering back to when I was younger shopping at a book store and I know at that time I purchased books based on what the cover looked like and whether or not it had pictures.  As I got older, and even now, the books I purchase are based on the title, and the back summary and other peoples reviews. You may walk into a store and see something on a hanger, and it can go either one or two ways, you could j...