"weekends off?, I think not!"
Wouldn't it be nice if we had the option to "take" the weekend off sometimes from our lives......?
I know most people at some point would agree, and the people I am about to mention, i'm sure would even settle for just 1 day off from their current lives.....
This came to mind from something one of my Dr, said:
As we sat waiting to see my "heam" team ( Dana Farber hematology team) fingers crossed waiting to see results of lab work, to determine how long our day there would be, hoping for a short day, Javier agreeing hoping to enjoy some DF cafeteria breakfast, so many emotions were going through my mind. This type of visit happens every 2 weeks, and with all the waiting time, it lets my mind go crazy. Every visit starts with a trip to the 2nd floor lab, no matter what time you get there, there always behind and usually very few vacant seats ( blood draw scheduled at 745 and they were already 25 minutes behind), sets the tone for the day. While sitting there, I find myself feeling very sad, not for myself, but for the people and the family members that we are surrounded by, the ones that are masked and gloved, the ones that are bald and heads covered by bandannas the ones that are clearly battling for there lives, to a visual eye, some are smiling and acting so positive, but I sometimes wonder what emotions they are hiding behind. I try to keep myself busy and not look around too much, but when I catch someone staring at me, masked and sitting in my wheelchair, I wonder what they are thinking and what conclusions they are making about me. Most of the patients waiting the nurses look around before calling name out, because most of us are not one time visitors. DONE on 2nd floor, we go to 8th floor, which is where the fate of our day will be determined. Longest day is blood transfusion days, shorter days are iron infusions and or bone marrow enhancing shots or IV fluids and or IV pain meds. On average, a short day would be 3 hours, and a long day could be up to 7 hours. This particular day the doctor told me no blood needed but I could decrease my self injected blood thinners to MWF, she said you get to have "the weekends off." I found this really funny that I was excited to finally have the weekends off of something.
However, apparently my skin did not get that memo. Saturday around noon, my central line bandage, one that we have used in the past, decided it wanted to severely infuriate my skin. My skin felt like it was burning off, having to have my brother try to cut off bandage and tape because it was stuck to my raw skin. So even though I didn't get the weekend off, I did luck out as my on- call nurse just happened to be in this area! And if I didn't actually get the " weekend off", I was happy that my favorite nurse didn't have this weekend off either.
The choice of font color was inspired by "think pink" for breast cancer, thought that because of the Dana Farber background I found it appropriate.
I know most people at some point would agree, and the people I am about to mention, i'm sure would even settle for just 1 day off from their current lives.....
This came to mind from something one of my Dr, said:
As we sat waiting to see my "heam" team ( Dana Farber hematology team) fingers crossed waiting to see results of lab work, to determine how long our day there would be, hoping for a short day, Javier agreeing hoping to enjoy some DF cafeteria breakfast, so many emotions were going through my mind. This type of visit happens every 2 weeks, and with all the waiting time, it lets my mind go crazy. Every visit starts with a trip to the 2nd floor lab, no matter what time you get there, there always behind and usually very few vacant seats ( blood draw scheduled at 745 and they were already 25 minutes behind), sets the tone for the day. While sitting there, I find myself feeling very sad, not for myself, but for the people and the family members that we are surrounded by, the ones that are masked and gloved, the ones that are bald and heads covered by bandannas the ones that are clearly battling for there lives, to a visual eye, some are smiling and acting so positive, but I sometimes wonder what emotions they are hiding behind. I try to keep myself busy and not look around too much, but when I catch someone staring at me, masked and sitting in my wheelchair, I wonder what they are thinking and what conclusions they are making about me. Most of the patients waiting the nurses look around before calling name out, because most of us are not one time visitors. DONE on 2nd floor, we go to 8th floor, which is where the fate of our day will be determined. Longest day is blood transfusion days, shorter days are iron infusions and or bone marrow enhancing shots or IV fluids and or IV pain meds. On average, a short day would be 3 hours, and a long day could be up to 7 hours. This particular day the doctor told me no blood needed but I could decrease my self injected blood thinners to MWF, she said you get to have "the weekends off." I found this really funny that I was excited to finally have the weekends off of something.
However, apparently my skin did not get that memo. Saturday around noon, my central line bandage, one that we have used in the past, decided it wanted to severely infuriate my skin. My skin felt like it was burning off, having to have my brother try to cut off bandage and tape because it was stuck to my raw skin. So even though I didn't get the weekend off, I did luck out as my on- call nurse just happened to be in this area! And if I didn't actually get the " weekend off", I was happy that my favorite nurse didn't have this weekend off either.
The choice of font color was inspired by "think pink" for breast cancer, thought that because of the Dana Farber background I found it appropriate.
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